Sources and further reading

AdditionalReading1000pxv2

Sources

Act on Copyright in Literary and Artistic Works. (1960:729). Retrieved 27 November 2017 from http://www.wipo.int/edocs/lexdocs/laws/en/se/se124en.pdf

Act No. 101/2000 Coll., on the Protection of Personal Data. (2000). Retrieved 27 November 2017 from https://www.uoou.cz/en/vismo/zobraz_dok.asp?id_org=200156&id_ktg=1107&archiv=0&p1=1105

Association of Universities in the Netherlands. (2014). The Netherlands Code of Conduct for Academic Practice. Retrieved from http://www.vsnu.nl/files/documenten/Domeinen/Onderzoek/The_Netherlands_Code%20of_Conduct_for_Academic_Practice_2004_(version2014).pdf

Auteurswet. (2017). Retrieved 27 November 2017 from http://wetten.overheid.nl/BWBR0001886/2017-09-01

Booth, A. (2009). Innovative Uses if the Freedom of Information Act (2000) for Research. Retrieved from http://www.rin.ac.uk/system/files/attachments/Innovative_Uses_of_the_FOIA_for_Research_-_updated_paper_by_Andrew_Booth_Apr_2009.doc.

CESSDA. (2017). Adapt your Data Management Plan. CESSDA. (2017). A list of Data Management Questions based on the Expert Tour Guide to Data Management. Retrieved from https://www.cessda.eu/content/download/3844/35033/file/20171117DMPQuestionsCESSDAExpertTourGuide.pdf

Copyright Act No. 121/2000; 07/2017. (2000). Retrieved 27 November 2017 from http://www.wipo.int/wipolex/en/text.jsp?file_id=137175

Copyright Act (404/1961, amendments up to 608/2015). (2015). Retrieved 27 November 2017 from http://www.finlex.fi/en/laki/kaannokset/1961/en19610404.pdf

Data Protection Ombudsman. (n.d.). Data Protection Ombudsman. Retrieved from http://www.tietosuoja.fi/en/index.html

Directive 95/46/EC of the European Parliament and of the council. (1995). Retrieved 23 November 2017 from http://eur-lex.europa.eu/LexUriServ/LexUriServ.do?uri=CELEX:31995L0046:en:HTML

ESRC. (n.d.). Example flowchart of ethics review process. Retrieved from http://www.esrc.ac.uk/files/funding/guidance-for-applicants/ethics/example-flowchart-of-ethics-review-process/

ESRC. (2017a). Economic and Social Research Council: Research ethics. Retrieved from http://www.esrc.ac.uk/funding/guidance-for-applicants/research-ethics/

ESRC. (2017b). Economic and Social Research Council: Ethics case studies. Retrieved from http://www.esrc.ac.uk/funding/guidance-for-applicants/research-ethics/ethics-case-studies/

ESRC. (2017c). Case study: anonymity and consent in research with asylum seekers. Retrieved from http://www.esrc.ac.uk/funding/guidance-for-applicants/research-ethics/ethics-case-studies/case-study-anonymity-and-consent-in-research-with-asylum-seekers/

EUREC. (n.d.). European Network of Research Ethics Committees - EUREC. Retrieved from http://www.eurecnet.org/index.html

European Commission. (n.d.). Research and Innovation: Ethics. Retrieved from https://ec.europa.eu/research/participants/docs/h2020-funding-guide/cross-cutting-issues/ethics_en.htm

European Commission. (2013). Ethics for researchers. Retrieved from https://ec.europa.eu/research/participants/data/ref/fp7/89888/ethics-for-researchers_en.pdf

European Commission. (2016). H2020 Programme Guidance: How to complete your ethics self assessment. Retrieved from https://ec.europa.eu/research/participants/data/ref/h2020/grants_manual/hi/ethics/h2020_hi_ethics-self-assess_en.pdf

European Parliament. (2001). Directive 2001/29/EC of the European Parliament and of the Council of 22 May 2001 on the harmonisation of certain aspects of copyright and related rights in the information society. Retrieved from http://eur-lex.europa.eu/LexUriServ/LexUriServ.do?uri=CELEX:32001L0029:EN:HTML

European Union. (2016a). General Data Protection Regulation. Retrieved from https://gdpr-info.eu/

European Union. (2016b). Regulation (EU) 2016/679 of the European Parliament and of the council. Retrieved from: http://ec.europa.eu/justice/data-protection/reform/files/regulation_oj_en.pdf

Federal Act on Copyright and Related Rights. (1992). Retrieved 27 November 2017 from https://www.admin.ch/opc/en/classified-compilation/19920251/index.html

FORS. (n.d.). FORScenter. Informed consent for qualitative research projects. Retrieved from https://www.cessda.eu/cessda_adm/content/download/3847/35048/version/1/file/TemplateInformedConsentQualitativeResearchProjectsFORS.docx

Finnish Social Science Data Archive. (2017a). Informing Research Participants. Retrieved from http://www.fsd.uta.fi/aineistonhallinta/en/informing-research-participants.html

Finnish Social Science Data Archive. (2017b). Anonymisation and Personal Data. Retrieved from http://www.fsd.uta.fi/aineistonhallinta/en/anonymisation-and-identifiers.html#tidentifier-type-table

Finsterwald, S. (2016). Data protection in Switzerland: overview. Retrieved from https://uk.practicallaw.thomsonreuters.com/9-502-5369?ransitionType=Default&contextData=sc.Default)&firstPage=true&bhcp=1

General Data Protection Regulation (Chapter 2, Article 5). Retrieved 23 November 2017 from https://gdpr-info.eu/art-5-gdpr/

General Data Protection Regulation (Article 89). Retrieved 23 November 2017 from https://www.privacy-regulation.eu/en/89.htm

Gush, K., Laurie, H. (2015). Understanding Couples' Experiences of Job Loss in Recessionary Britain: a Linked Qualitative Study, 2008-2013: Special Licence Access. [data collection]. UK Data Service. SN: 7657. Retrieved form http://doi.org/10.5255/UKDA-SN-7657-1

GOV.UK. (n.d.) How to make a freedom of information (FOI) request. Retrieved from https://www.gov.uk/make-a-freedom-of-information-request

ICO. (n.d.a). What is the Freedom of Information Request? Retrieved from https://ico.org.uk/for-organisations/guide-to-freedom-of-information/what-is-the-foi-act/

ICO. (n.d.b). What should we do when we receive a request for information? Retrieved from https://ico.org.uk/for-organisations/guide-to-freedom-of-information/receiving-a-request

Institute for Employment Studies. (2004). The RESPECT Code of Practice. Retrieved from http://www.respectproject.org/code/

ISSP. (n.d.). International Social Survey Programme. Retrieved from http://www.issp.org/menu-top/home/

Knowlegde Exchange. (2011). A study exploring the legal status of research data within the KE partner countries. Retrieved from http://www.knowledge-exchange.info/event/legal-status

Lov om opphavsrett til åndsverk. (2015). Retrieved 27 November 2017 from https://lovdata.no/dokument/NL/lov/1961-05-12-2

Lov om opphavsrett til åndsverk/1961-05- 12-2/§1. Retrieved 27 November 2017 from https://lovdata.no/lov/1961-05-12-2/§1

Lov om opphavsrett til åndsverk/1961-05- 12-2/§7. Retrieved 27 november 2017 from https://lovdata.no/lov/1961-05-12-2/§7

Lov om opphavsrett til åndsverk/1961-05- 12-2/§43. Retrieved 27 november 2017 from https://lovdata.no/lov/1961-05-12-2/§43

Ministry of Culture Czech Republic. (2000). Copyright act. Retrieved from https://www.mkcr.cz/doc/cms_library/12-az_2006_v_aj-2005.pdf

NSD. (n.d.a). NSD - Norwegian Centre for Research Data. Retrieved from http://www.nsd.uib.no/nsd/english/index.html

NSD. (n.d.b). Do I have to notify my project?. Retrieved from http://www.nsd.uib.no/personvernombud/en/notify/index.html

NSD. (n.d.c). Notification form for research- and student projects processing personal data. Retrieved from http://www.nsd.uib.no/personvernombud/en/notify/meldeskjema?eng

OpenAIRE. (2017). Personal data and the Open Research Data Pilot. OpenARIE Horizon 2020 Fact Sheets. Retrieved from https://www.cessda.eu/content/download/3846/35043/file/personal_data_factsheet_updated_April17.pdf

Personal Data Act (523/1999). (1999). Retrieved 29 November 2017 from http://www.finlex.fi/en/laki/kaannokset/1999/en19990523.pdf

Personal Data Act. (2000). Retrieved 27 November 2017 from https://www.datatilsynet.no/en/regulations-and-tools/regulations-and-decisions/norwegian-privacy-law/personal-data-act/

Research Data Netherlands. (n.d.). RDNL: Research Data Netherlands. Retrieved from http://www.researchdata.nl/en/

Seymour, J. (2010-2012). Managing suffering at the end of life: a study of continuous deep sedation until death. [Data Collection]. Colchester, Essex: Economic and Social Research Council. doi:10.5255/UKDA-SN-850749

The federal council. (2014). Federal Act on Data Protection. Retrieved from https://www.admin.ch/opc/en/classified-compilation/19920153/index.html

The federal council. (2012). Ordinance to the Federal Act on Data Protection. Retrieved from https://www.admin.ch/opc/en/classified-compilation/19930159/index.html

The Norwegian National Research Ethics Committees. (n.d.). Guidelines for research ethics. Retrieved from https://www.etikkom.no/en/

The Norwegian National Research Ethics Committees. (2014). Research Ethics Checklist Retrieved from https://www.etikkom.no/en/ethical-guidelines-for-research/research-ethical-checklist/

UK Data Archive. (n.d.a). Consent Form. Retrieved from http://data-archive.ac.uk/media/210661/ukdamodelconsent.doc

UK Data Archive (n.d.b.) Text anonymisation helper tool. Retrieved from http://data-archive.ac.uk/curate/standards-tools/tools

UK Data Service. (n.d.). MRC Informed Consent. Retrieved from https://www.ukdataservice.ac.uk/media/604761/mrc_cbu_informed_consent_template.pdf

UK Data Service (2016). MRC Information Sheet. Retrieved from https://www.ukdataservice.ac.uk/media/604760/mrc-cbu-participant-information-sheet-template.pdf

UK Data Service. (2017a). Consent for data sharing. Retrieved from https://www.ukdataservice.ac.uk/manage-data/legal-ethical/consent-data-sharing/consent-forms

UK Data Service. (2017b). Maggie Mort. Retrieved from https://www.ukdataservice.ac.uk/deposit-data/stories/mort

UK Data Service. (2017c). Maintaining the balance between confidentiality and usefulness of the data. Retrieved from https://www.ukdataservice.ac.uk/deposit-data/stories/gush

UK Data Service. (2017d). Terms and conditions for access. Special license. Retrieved from https://www.ukdataservice.ac.uk/get-data/how-to-access/conditions/special-licence

Université de Genève. (2010). Handbook Copyright in Education. Retrieved from http://www.diceproject.ch/wp-content/uploads/2011/11/Handbook_web_en_2.pdf

WIPO. (1979). Berne convention for the protection of literary and artistic works. Retrieved from http://www.wipo.int/wipolex/en/treaties/text.jsp?file_id=283698

Further reading

Data protection leglislation

For more diversity in European legislation on data protection, you can have a look at The International Compilation of Human Research Standards (Office for Human Research
Protections (2017), retrieved from https://www.hhs.gov/ohrp/sites/default/files/international-compilation-of-human-research-standards-2017.pdf
It enumerates over 1,000 laws, regulations, and guidelines that govern human subjects research in 126 countries, as well as standards from a number of international and regional organizations. Although this compilation is focused on medical research, it is of use for social scientists as well.

Anonymisation

Elliot, M., Mackey E., O’Hara, K., Tudor, C. UKAN (2016). The Anonymisation Decision-Making Framework. Retrieved from http://ukanon.net/wp-content/uploads/2015/05/The-Anonymisation-Decision-making-Framework.pdf