Ensuring a healthy future for scientific research through the Data Protection Regulation
Position of academic, patient and non-commercial research organisations – June 2015.
Following the Day of Action on Data for Health and Science on 16 June 2015 in Brussels, led by BBMRI-ERIC (Biobanks and Biomolecular Resources Research Infrastructure), and before the trialogue between the European Commission, the European Parliament, and the Council of the European Union on 24 June, CESSDA along with other key research organisations signed a joint statement by the Wellcome Trust.
Personal data provide a vital resource for health and other scientific research to benefit society and save and improve the lives of patients. It is essential that the European institutions find a compromise position that enables vital research to continue under the Data Protection Regulation.
Read about the Day of Action here.
Read the editorial in Nature "Data overprotection - Draft European rules governing privacy threaten to hamper medical research" (23 June 2015).
Share the editorial on twitter.